A Beacon of Hope for a Rare Disease
A 15-Year Partnership in the Fight Against NF2
Location: Twin Cities
Lindsay Shvetzoff finally found hope and life-saving treatment at the University of Minnesota after being denied care across the country for her rare disease, Neurofibromatosis type 2 (NF2). Neurofibromatosis type 2 (NF2) is a rare genetic condition that causes non-cancerous tumors to grow on nerves in the brain, spinal cord, and inner ear, which can lead to hearing loss and balance problems. The difference was finding a partner in Dr. Christopher Moertel, who saw Shvetzoff as more than a number. He worked to get her enrolled in a clinical trial to receive the drug Avastin, which helped her avoid a devastating surgery that would have left her deaf and partially paralyzed. For 15 years, Dr. Moertel has been her advocate, ensuring she always leaves the clinic with more hope than when she came in. This powerful partnership and comprehensive care from the University of Minnesota team gave her back her life, allowing her to have two healthy sons and contribute to NF2 research for future patients.
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